Newsletter OUT NOW
Our latest edition of Post Polio Matters (edition 127) is out now and should be landing in your email inbox or through your letter box shortly. Enjoy!
Newsletter OUT NOW Read More »
Hilary Boone
Polio Survivors Network are very sad to announce that our founder and tireless advocate, Hilary Boone, passed away on 15 July 2024.
We send condolences to family and friends at this difficult time.
We will update with any funeral arrangements as we know many wish to show support.
A tribute page has been set up here: https://hilaryboone.muchloved.com/
Sending love to you all
Royal College of General Practioners (RCGP)
The RCGP and British Polio Fellowship have produced some useful e-learning to raise awareness of post-polio syndrome, with a particular focus on its presentation and recognition by health professionals. Click the icon below for the module
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My Polio Life & Preparing for an Appointment
Polio Survivors Network has produced a document to support you at medical appointments. This tool helps illustrate the changes, directing professionals to areas requiring further assessment. We hope you find it useful and would appreciate any feedback.
If you would like a printed copy posting to you – please request this by email. Or a print at home version is available below.
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EPU Spring Newsletter
Please see attached a copy of the European Polio Union’s Spring Newsletter. PSN are active members and we are sure you will find the content of interest.
EPU Spring Newsletter Read More »
What You Need To Know About My Condition
Polio Survivors Network with the help of The Neurological Alliance has provided an aid for Polio Survivors who are going into hospital. It is a document which can be filled in to provide medical staff with an overview of your situation and needs.
The most important thing to do is ensure that the form is up to date and to hand if you are admitted to hospital, pop it in your ‘go bag’ just in case. We hope you find it useful and would appreciate any feedback.
An digital version which can be typed into and then printed is available to download below along with a print at home form version. If you would like a form version posting to you – please request this by email.
What You Need To Know About My Condition Read More »
My Trip to Parliament as an Age UK Campaigner
Our very own Verité tells us about her experience – CLICK HERE
My Trip to Parliament as an Age UK Campaigner Read More »
Share your experience
Every polio survivor has a story to share. Your experience can help, encourage or even inspire others. How you have overcome challenges, what you have been able to do in your life, ways you have found to cope or just saying how tough it can be – all of these expressions can help others. It is not just helping fellow polio survivors but also helping health professionals, friends, family and carers to understand more fully what things are like for you.
Share your experience Read More »
Making A Difference Cards
Buy your personalised cards or 3D ecards for any occasion using Making A Difference Cards and help support Polio Survivors Network all year round, Making A Difference take no commission or charge any fees – so up to 100% of your donation reaches us or 125% if you Gift Aid it!
You can choose from over 1300 designs, customise your message/text, upload your own photos, send an audio or video message and have them delivered by post, email or text message.
Making A Difference Cards Read More »
My Neuro Survey
Are you getting the care and support you need for your neurological condition?
Share your experiences and help improve services here: http://qhweb.co.uk/myneuroNAM?LNA
